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  • SCH 58261 Mother years br Moreover parents sought informatio

    2019-11-11

    [(Mother, 36 years)]
    Moreover, parents sought information and emotional support from other SCH 58261 who were experiencing similar situations in the hospital. The shared information was considered useful and reliable because of the similar and real experiences of these families. The sharing of infor-mation and emotional support was usually mutual. Parents valued this kind of support because of its comforting and relaxing nature.
    “We parents usually talk about how to care for our hospitalized chil-dren……how to prevent infection and what we to do when children get infected. We always share some childcare tips. Some families
    have stayed here for a long time and they have rich experiences. I feel confident when chatting with these parents……We also like to
    talk with families having children who have completed the treat-ment when they come back for reexamination.”
    “To be honest, what we parents can do is to comfort each other. Ev-eryone here is very sad. We have to face all difficulties. We are stuck in the hospital, we should not isolate ourselves. There are many dif-ficulties ahead of us, it is important for us to find some time to take a break and relax. We parents can talk with each other at any time. This can allow us to relax for a while.”
    Not disclosing the unfavorable information
    This theme, not disclosing the unfavorable information, describes the efforts of parents to minimize the effects of a child's hospitalization on the families by holding back unpleasant information from the family members, friends and relatives.
    Shielding the hospitalized children from unfavorable information
    The subtheme, shielding the hospitalized children from unfavorable information, describes parents' efforts to protect the hospitalized chil-dren by concealing the diagnosis of cancer and related information from their children. According to a mother, the reason behind the filter-ing of information was that her hospitalized child was unable to under-stand and accept the information.
    “He knows a little about his disease. He is too young to understand. I never explain it to him.” [(Mother, 32 years)]
    Protecting other family members from unfavorable information
    The subtheme, protecting other family members from unfavorable information, describes the efforts of parents to minimize their psycho-logical burden by concealing the unfavorable information from family members.
    “I would only share good news with my wife. She has already borne heavy psychological burdens. I know more about the cancer and my child's condition, I can handle it better. She knows little about this, so I only tell her what is good while concealing the bad.”
    Avoiding discussions with friends
    The subtheme, avoiding discussions with friends, reflects parents' unwillingness to share their negative feelings and news with non-family members (i.e., friends or relatives). This avoidance was attrib-uted to two factors. Firstly, parents did not wish to further worry their friends and relatives. Secondly, they worried that their friends may view the family differently, when knowing the truth. What a family dis-likes the most is being labeled as pathetic.
    “I do not want to bother them (friends and relatives). I am the kind of person who reports only good news. People are happy when shar-ing some good news, but if it is the bad news, I do not want to tell….” [(Mother, 43 years)]
    “Sometimes, they (friends and relatives) are more nervous than me because they think my son is diagnosed with an incurable dis-ease and we must be ‘pathetic’. That is why I do not like to contact them.”
    Q.-Y. Lyu et al. / Journal of Pediatric Nursing xxx (xxxx) xxx 5
    [(Mother, 32 years)] Seeking external support
    Discussion
    The findings obtained from this qualitative research highlighted that families used a range of coping strategies, generating four patterns. These patterns are discussed below.